| Samantha Parker appointed member EUCERD. |
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Eunefron Advisory Board member Samantha Parker has been appointed as a member of the European Union Committee of Experts on Rare Diseases (EUCERD). If you would like to read more about this, please click here. |
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| Registration for Symposium only. |
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The Eunefron Symposium is open to visitors from outside the consortium.If you are interested in attending please click here to download the symposium program and additional information. |
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| Periodic meeting and Symposium registration now open |
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Please use this form to register. Also, please book your own hotel. A list of suggested hotels can be found in the registration form. |
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| 22-23 October 2010 |
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Final date of the second periodic meeting of the EUNEFRON consortium.
Please find the program and flyer here. |
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| 16 June 2010 |
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Telephone meeting of the cystinosis group. |
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| 1 March 2010 |
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Request for Pendred patients to join a treatment study. For more information, please read more here. |
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| 22-24 March 2010 |
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Rare Disease symposium, Brussels. (Program) |
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Archive |
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| 19 January 2010 |
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Meeting of the cystinosis group in Paris. |
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| 15 January 2010 |
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Update of the Genotyping and Registry pages. |
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| 1 January 2010 |
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Official approval by the EU regarding the addition of partner 9, KU Leuven. |
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| 12 December 2009 |
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Meetings of the registry and cystinosis groups in Paris. |
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| 8 September 2009 |
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EUNEFRON's first periodic report approved by the EU. |
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| 8 September 2009 |
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EUNEFRON's first periodic report approved by the EU. |
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| 21 April 2009 |
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Eunefron's first periodic report handed in with the EU. |
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| 16-18 April 2009 |
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Eunefron's first periodic meeting is held in Zurich. |
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| 23-24 May 2008 |
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Eunefron kicks off with a meeting in Brussels. |
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