NEWS

Samantha Parker appointed member EUCERD.  

Eunefron Advisory Board member Samantha Parker has been appointed as a member of the European Union Committee of Experts on Rare Diseases (EUCERD). If you would like to read more about this, please click here.

     
Registration for Symposium only.  

The Eunefron Symposium is open to visitors from outside the consortium.If you are interested in attending please click here to download the symposium program and additional information.

     
Periodic meeting and Symposium registration now open  

Please use this form to register. Also, please book your own hotel. A list of suggested hotels can be found in the registration form.

     
22-23 October 2010  

Final date of the second periodic meeting of the EUNEFRON consortium.
Please find the program and flyer here.

     
16 June 2010   Telephone meeting of the cystinosis group.
     
1 March 2010   Request for Pendred patients to join a treatment study. For more information, please read more here.
     
22-24 March 2010   Rare Disease symposium, Brussels. (Program)
     
     

Archive

   
     
19 January 2010   Meeting of the cystinosis group in Paris.
     
15 January 2010   Update of the Genotyping and Registry pages.
     
1 January 2010   Official approval by the EU regarding the addition of partner 9, KU Leuven.
     
12 December 2009   Meetings of the registry and cystinosis groups in Paris.
     
8 September 2009   EUNEFRON's first periodic report approved by the EU.
     
8 September 2009   EUNEFRON's first periodic report approved by the EU.
     
21 April 2009   Eunefron's first periodic report handed in with the EU.
     
16-18 April 2009   Eunefron's first periodic meeting is held in Zurich.
     
23-24 May 2008   Eunefron kicks off with a meeting in Brussels.